Saturday, December 15, 2007

Happy Holidays!

Nyla, Ethan and Liam, December 2007

Thursday, December 13, 2007

Post surgery pictures

Well today was supposed to be our 2 week follow-up visit at Children's. Unfortunately, another storm is blasting our area with sleet, snow and ice. SNOW DAY! I called the clinic, gave them an update on how Ethan is doing and they gave me the ok to come next week instead. I emailed their clinical coordinator a couple of photos of his palate. I had them posted here but my sister pointed out that Ethan maybe wouldn't appreciate me showing everyone his mouth one day. So if anyone who has a child needing this surgery and would like to see before and after pictures I would be happy to share them.

Ethan is sleeping much better now (thanks to nonna's blankie) and the splints will remain on for another week. I can take them off for short periods during the day. They are allowing us to feed him soft foods as well. We are hopeful that Ethan's incisions will fully heal in the next couple of weeks, thanks for all your prayers!

I will use this blog to give updates to friends and family if Ethan is going to need further surgery in 3-6 months. Thanks for following his progress and we are very grateful for your support. Happy holidays and best wishes for the New Year!

Friday, December 7, 2007

Update

We are just over a week post-op and Ethan is doing really well. The first week home was hard on him, during the night he never slept more than 2 hours in a stretch. He would wake up crying and even when he was sleeping he seemed aggitated, constantly flipping over in his crib. He spent a lot of time sleeping in our arms the first few nights, but once his pain subsided I tried very hard to get him back in his crib. Basically I pulled his crib up against the bed and tried to comfort him without always picking him up. When I was about ready to give up from exhaustion, Ethan started sleeping for longer stretches of time.

No one who saw Ethan during the day would think anything was wrong. He has been playful and happy with the exception of the first couple of days post-op. For the first week home we mainly fed him formula. Now we are feeding him things like watered down pudding, yogurt, cream soup & pureed baby foods.

Ethan is able to crawl and furniture walk despite the splints. He also doesn't have trouble playing with most toys.

Ethan is always happy during the day, nights are a different story.

Ethan at his 1 week follow up visit with Dr.Jiang. We are very fortunate to have a great surgeon!